A whole list of things to do and can't get them done. I hate days like this! Marissa is home sick. She has an upset tummy and started throwing up. She not an easy sick kid. A lot of whaling and crying. I feel bad for her but the constant complaining can really get to me. Still, poor thing. Maybe I can sneak downstairs and work on some Disney World pictures. I got my photo pass CD a couple of days ago, so I have lots of work to do!
This last November we took Lindsey in for her regular heart check up. Because she is getting older they started doing more extensive testing to make sure everything is functioning, as it is suppose to. She sat completely still for an hour while she got her Echo done, and was amazing. She has a runny nose that day and had to wear a mask at Primary Children’s, and she was not happy about it. I decided to wear a mask with her, and it made her feel a little better. I thought for sure she was just going to be a bear the rest of the time, but she was super brave through all the testing. At the end of the Echo the lady doing the testing went and got another guy to come in and take some more specific shots. This got me a little worried. When the doctor came in he told us that Lindsey was doing excellent. She was very healthy and that her arch and valve where doing remarkably well. And they were very encouraged by the results. However he then informed us that they had something that was more concerning. They had discovered thought the Echo that Lindsey has Non-Compaction Cardiomyopathy. This is where the left vetracal of her heart is deformed and will eventually stop working correctly. The defect is relativity new and rare. They only diagnose about two cases a year. Hopefully when her heart starts to fail it can be controlled with medicine and then worst-case scenario of course it heart transplant.
Automatically I became a stress case. Jeff is of course handled it all just fine. It makes me laugh because he is a pessimist and I’m an optimist, but we are so different when it comes to worrying about Lindsey. The diagnoses kind of put me in a depression for a couple of months. I feel I'm handling it better now and am looking more on the positive side. But I'm her Mom and will worry every day I'm sure. It has also lead to a lot of questions from Lindsey, and of course Gavin & Marissa. We have been having discussions and I think they are kind of understanding thing a little more, but they are young and I don’t feel like they need to know all the facts yet. Lindsey however is happy and healthy and doing great! She is enjoying Kindergarten and loves being a princess.
I swore I would never be one of those people who forgot to write in their blog. And her I am, almost six months in and haven't written on my blog. I got kinda thrown for a loop after Lindsey's last diagnoses and haven't done much of anything. For those who don't know, I will have to write about it later. I can't remember the name of her new heart problem. Bad mom! He! He! He!
I am a mother, wife, decorator, cook and photographer. My number on priority in life is my three beautiful children, that make my life crazy and wonderful all at the same time. Time with them goes so quickly and I take great joy in document our wonderful family through photos and scrapbooking. I love traveling, digital imaging and decorating, or as my husband puts it, spending all his money.